A few months ago, I was driving to see a client, and as I always do when I'm on the Inner City Bypass, I quickly looked to my left where the Royal Children's Hospital is. Or I should say, was. When I'd finished my shift, I drove back to the Royal, parked my car and got as … Continue reading Endings, beginnings …
I don't usually share fundraisers, and I don't have any time for often vacuous fundraising campaigns, but this one is so far from vacuous, I don't even know where to start. I've said time and time again that Cystic Fibrosis is a fucker of a disease. It takes everything both necessary and dear to you … Continue reading With a little help from my friends?
We all reach places in life. Crossroads, turning points, junctures, choices, decisions - even Rubicon moments. For me, after nineteen years, I've reached a place of happiness and peace having come into the quiet of my heart. I feel settled. Life is simple, so I'm going with the ease and grace of that. I've done … Continue reading Transplanniversary, with a solar eclipse chaser
Someone I've known just shy of twenty years said something to me back in September, and I've been ruminating over it as I approach my fortieth birthday. We were talking about our inner voice. You know, about what we say to our selves in the quiet of our hearts; the things we think, but keep to … Continue reading Ch-Ch-Ch-Chaaaaaanges
Tonight as the waning moon floats between shelves of cloud - the stars liquid and alive - I will whisper, 'I am still here.' A bittersweet offering, but one I cast into the world as a call to arms. With each passing year, I harvest guilt, siphoning off grief as I pick the fruit and plant more seeds for … Continue reading A love letter to my lungs on this, your eighteenth birthday
In May, I was invited to speak at the P.A's clinical ethics forum for National Palliative Care week. This year's theme was 'Living Well with Chronic Illness', and before the forum, I met with three lovely ladies to mull over what I might like to discuss in my talk (sex? It was a unanimous YES). … Continue reading Speaking my truth (and a whole lot of fact)
A story from my childhood has recently been featured on photographer and multidisciplinary artist Mindy Stricke's website for her 'Grief Landscapes' project. You can find it here. A little about 'Grief Landscapes' ... 'for the initial phase of Grief Landscapes, I’m documenting the unique terrain of people’s grief through photography and a collaborative process with the … Continue reading Purple cardigan
Life. It gets in the way. That's why I haven't blogged for three months because there's been a lot going on. For the last month or so, I've been down with the lurgy (the flu), but after two courses of antibiotics, probiotics, lots of vitamins, good food and rest, I'm on my way to being back … Continue reading Where in the world are you, Carmen Sandiego?
A couple of years after my transplant, I was assaulted. Had the shit beaten out of me. What made it even more shameful, was that I was beaten up by a girl. Of course this rationale has evolved with the gradual unfurling of my life and hard won wisdom, so I know that it doesn't matter who … Continue reading When you get punched in the face
I'm just about jumping out of my skin. I had my first good night's sleep in eleven days, so I'm feeling rested. I've been waking up around 4-5am, which is not the norm for me. I've never been a morning person, though when I first moved into my beloved flat I became one of those morning … Continue reading My new normal