I've been thinking about my thirties. About how they started, and how they're about to end. Ten years ago at my thirtieth birthday party, I was bloated from massive doses of steroids I'd had to have earlier in the year due to a serious respiratory virus. I was puffy faced and swollen, and going into my third … Continue reading The birth of my fourth decade
I never thought I would see another eight years. Really, I didn't. After my cancer surgery in 2007, my oncologist was certain that more cancer would grow, that the surgery I had wouldn't hold, and that I'd die. Thankfully that hasn't happened, and today marks eight years since I underwent the surgery to save my life. … Continue reading Eight years in remission – viva la vulva!
I posted a rant on my chasing away salt water page earlier today, much of which I've included in this piece. It involves the Cystic Fibrosis community - my community, if you will - and my burning question was this: when will people start taking responsibility for their lives? Why are there GoFundMe pages being created to ask for … Continue reading I am an addict
Last night saw unprecedented measures of anger, disbelief and absolute exasperation surrounding the 60 Minutes interview with disgraced 'wellness' blogger and creator of The Whole Pantry empire, Belle Gibson. For once, I went against my better judgment and watched the interview and as a cancer survivor, I have a few things to say. Firstly, I … Continue reading Why I forgive Belle Gibson
Today I found the most amazing resource for people - young people - who have ileostomies and stomas (poo bags). You can read about my experience with my poo bag HERE. Ever so glamorous, though it was really the most harrowing time of my life and I physically and spiritually felt a part of myself disappear. … Continue reading Where was this when I needed it?
She sits by the windowsill - window seat holding her shearing form. Fingers of sunlight splay across her back and she smells tuberose on the morning air as her body is swallowed by the full throat of summer. Shifting her form to a gentle lean, she spies a framework of desire where the language of hummingbirds between … Continue reading Topography
Candy in a bag - recollections of a need when my mind was an unswept room, my body a husk, full of holes so thick I thought I would leak. Needles in my bedside drawer, ampoules ready to be snapped off at the yellow line - that crisp and thrilling pop. No greater satisfaction, nor ever surpassed. … Continue reading Being woken at the gates of heaven
Yesterday my TEDx talk went live on TEDx Brisbane's YouTube channel, and I've had an almost overwhelming response about speaking about my life (and deaths), and my beliefs and truths about death and dying. Here it is - Learning to Die. I've been bathing in the beautiful waters of Death Walking training over the last two days, the last … Continue reading Learning to Die: my TEDx talk
I have super exciting news. Yesterday, I was asked to speak at Brisbane's TEDx event in October. In case you haven't heard about TEDx, click here to find out what an inspiring global platform where people such as Bill Gates, Liz Gilbert, Jane Goodall and Al Gore have shared their ideas. The 2014 speakers have … Continue reading I’m going to be a TEDx talker!
Cystic Fibrosis is an often invisible dis-ease. Because my body is working as it should be right now, I'm not underweight as I was pre-transplant. Weighing 38kg was certainly not invisible, and it came with stares and whispers of anorexia and bulimia. I know people who suffer from eating disorders and would never say, 'if only … Continue reading The invisibility of illness