With a little help from my friends?

I don't usually share fundraisers, and I don't have any time for often vacuous fundraising campaigns, but this one is so far from vacuous, I don't even know where to start. I've said time and time again that Cystic Fibrosis is a fucker of a disease. It takes everything both necessary and dear to you … Continue reading With a little help from my friends?

When you get punched in the face

A couple of years after my transplant, I was assaulted. Had the shit beaten out of me. What made it even more shameful, was that I was beaten up by a girl. Of course this rationale has evolved with the gradual unfurling of my life and hard won wisdom, so I know that it doesn't matter who … Continue reading When you get punched in the face

I am an addict

I posted a rant on my chasing away salt water page earlier today, much of which I've included in this piece. It involves the Cystic Fibrosis community - my community, if you will - and my burning question was this: when will people start taking responsibility for their lives? Why are there GoFundMe pages being created to ask for … Continue reading I am an addict

The week that was …

Last weekend saw me help shepherd my sister out of the shadows of a broken marriage and into freedom. Freedom from years and seasons of pain and sacrifice, and freedom born out of an indelible cost to her humanity and identity as a woman. A big group of people who love her ferried her out of … Continue reading The week that was …

What will you do today?

This is a post I wrote on Sunday 21st February, 2010. It always brings what is truly important to the forefront of my mind. For just over an hour yesterday, I thought I was having a stroke. I woke with a headache, so when it didn't abate after I had eaten, I sucked back two … Continue reading What will you do today?

Why I forgive Belle Gibson

Last night saw unprecedented measures of anger, disbelief and absolute exasperation surrounding the 60 Minutes interview with disgraced 'wellness' blogger and creator of The Whole Pantry empire, Belle Gibson. For once, I went against my better judgment and watched the interview and as a cancer survivor, I have a few things to say. Firstly, I … Continue reading Why I forgive Belle Gibson

Autopsy of a marriage

Thrumming away from each other like broken mountains, by your second year, you had been excommunicated. Wrought by the passage of God, your clipped speech and ruddy cheeks made it hurt to be alive.   Her dowry – platelets swimming under skin and a fertile womb. Yours – a cellar of wine and an insistent mother whose teat you … Continue reading Autopsy of a marriage

Where was this when I needed it?

Today I found the most amazing resource for people - young people - who have ileostomies and stomas (poo bags). You can read about my experience with my poo bag HERE. Ever so glamorous, though it was really the most harrowing time of my life and I physically and spiritually felt a part of myself disappear. … Continue reading Where was this when I needed it?

TEDx – the lovers, the dreamers and me …

So things have really ramped up for Sunday's TEDx event. Because I've only had three weeks to prepare (the usual turn around time from being asked to speak and actually speaking is six weeks, but I was a late inclusion - thank you for asking me, TEDx!) sleep has been elusive and nerves a little … Continue reading TEDx – the lovers, the dreamers and me …

I’m going to be a TEDx talker!

I have super exciting news. Yesterday, I was asked to speak at Brisbane's TEDx event in October. In case you haven't heard about TEDx, click here to find out what an inspiring global platform where people such as Bill Gates, Liz Gilbert, Jane Goodall and Al Gore have shared their ideas. The 2014 speakers have … Continue reading I’m going to be a TEDx talker!