With a little help from my friends?

I don't usually share fundraisers, and I don't have any time for often vacuous fundraising campaigns, but this one is so far from vacuous, I don't even know where to start. I've said time and time again that Cystic Fibrosis is a fucker of a disease. It takes everything both necessary and dear to you … Continue reading With a little help from my friends?

A trip of infinite sadness and regret

I've been sorting through index cards, rogue pieces of paper and old photos because I'm moving. Moving out of the city, and returning to the trees and all of the secrets they're waiting to tell me. They've been calling me for a while, and it's time. I've become weary of city living over the last couple … Continue reading A trip of infinite sadness and regret

The Spirit of Things

For the last eighteen months, I've been on the organising committee for the 2017 Spiritual Care Australia conference, alongside three other incredible spiritual carers, Tanya, David and Pauline. Earlier in the month, the three day spiritual bonanza/lovefest was held on the Gold Coast where it was a resounding success (no, I'm not being biased - we kicked … Continue reading The Spirit of Things

Ch-Ch-Ch-Chaaaaaanges

Someone I've known just shy of twenty years said something to me back in September, and I've been ruminating over it as I approach my fortieth birthday. We were talking about our inner voice. You know, about what we say to our selves in the quiet of our hearts; the things we think, but keep to … Continue reading Ch-Ch-Ch-Chaaaaaanges

The places I go …

Wooloweyah 28.6.16 It is akin to a dream, this dense clump of trees unfolding before me, reaching sharply into the sky. As I walk through the forest under canopies of palms and eucalypts and a discord of screaming birds, my feet arrive at a bog. I'm at the lip of a lake I cannot reach for the … Continue reading The places I go …

When you get punched in the face

A couple of years after my transplant, I was assaulted. Had the shit beaten out of me. What made it even more shameful, was that I was beaten up by a girl. Of course this rationale has evolved with the gradual unfurling of my life and hard won wisdom, so I know that it doesn't matter who … Continue reading When you get punched in the face

I’m going to India!

So how's 2016 treating you so far? I'm deliriously happy to report that mine has begun like no other. Strange things are happening to my body and I'm rising earlier than ever (think 4-5.30am). I'm off the valium I was taking for my restless legs, and I think what has happened is that my body … Continue reading I’m going to India!

Oh my – we have a New Year IN our hands and it’s going to be radtastic!

Yesterday I turned thirty-nine - a stage of life I never thought I would or could ever reach from when I was was a little girl, to when I had my transplant and certainly after I survived cancer. Each year is such a gift, and age is a privilege. Lungs in perfect working order for … Continue reading Oh my – we have a New Year IN our hands and it’s going to be radtastic!

My new normal

I'm just about jumping out of my skin. I had my first good night's sleep in eleven days, so I'm feeling rested. I've been waking up around 4-5am, which is not the norm for me. I've never been a morning person, though when I first moved into my beloved flat I became one of those morning … Continue reading My new normal

The bitter taste of defeat and failure

Always expect the unexpected. Be prepared like a girl scout without the rules (but with the cookies). That's always been one of my life's mottos. After taking my last ever dose of opiate antagonist therapy last Friday, I was relieved when I only had some minor restless limbs when I turned in for bed that evening. … Continue reading The bitter taste of defeat and failure