Life. It gets in the way. That's why I haven't blogged for three months because there's been a lot going on. For the last month or so, I've been down with the lurgy (the flu), but after two courses of antibiotics, probiotics, lots of vitamins, good food and rest, I'm on my way to being back … Continue reading Where in the world are you, Carmen Sandiego?
A couple of years after my transplant, I was assaulted. Had the shit beaten out of me. What made it even more shameful, was that I was beaten up by a girl. Of course this rationale has evolved with the gradual unfurling of my life and hard won wisdom, so I know that it doesn't matter who … Continue reading When you get punched in the face
So how's 2016 treating you so far? I'm deliriously happy to report that mine has begun like no other. Strange things are happening to my body and I'm rising earlier than ever (think 4-5.30am). I'm off the valium I was taking for my restless legs, and I think what has happened is that my body … Continue reading I’m going to India!
Yesterday I turned thirty-nine - a stage of life I never thought I would or could ever reach from when I was was a little girl, to when I had my transplant and certainly after I survived cancer. Each year is such a gift, and age is a privilege. Lungs in perfect working order for … Continue reading Oh my – we have a New Year IN our hands and it’s going to be radtastic!
I'm just about jumping out of my skin. I had my first good night's sleep in eleven days, so I'm feeling rested. I've been waking up around 4-5am, which is not the norm for me. I've never been a morning person, though when I first moved into my beloved flat I became one of those morning … Continue reading My new normal
I made a big decision yesterday. I decided that I no longer need my opiate antagonist therapy. I had planned to stop on my birthday, which just happens to fall on New Year's Eve, but I've been feeling so happy and settled that I knew I could do it. And so I did. The 'high' from … Continue reading The power of choice
Today, my friend - the other Carly, Carly Findlay - wrote a shut up amazing piece about apologising and how she no longer wants to apologise for what is beyond her control. Shortly after reading Carly's piece, I saw the photo Annie Leibovitz took of Amy Schumer in all of her near-naked and non-apologetic glory. I … Continue reading Why I’m NOT sorry
Earlier in the week, someone asked me what I've been up to. 'Reading, writing, stuff ...' But mainly reading and writing, hanging out with my sister and my nephews, working, planning, walking and dreaming. It's true - I'm an abject failure of a social butterfly, although I did actually go OUT Friday night to the opening … Continue reading My summer of love
I just found this article by the fabulous Kathleen Noonan from 2008 where she describes me as a 'dirty-winged angel.' The photo below taken by my friend Alicia Alit-Trevatt who photographed my entire transplant surgery was run with the article. As it happens, I did get that tattoo Kathleen writes about. It reads 'a reminder … Continue reading Public record denying my snowflake status 🙂
I posted a rant on my chasing away salt water page earlier today, much of which I've included in this piece. It involves the Cystic Fibrosis community - my community, if you will - and my burning question was this: when will people start taking responsibility for their lives? Why are there GoFundMe pages being created to ask for … Continue reading I am an addict