I've been thinking about my thirties. About how they started, and how they're about to end. Ten years ago at my thirtieth birthday party, I was bloated from massive doses of steroids I had earlier in the year thanks to a serious respiratory virus. I was puffy faced and swollen, or if I was being truly honest, … Continue reading The birth of my fourth decade
In May, I was invited to speak at the P.A's clinical ethics forum for National Palliative Care week. This year's theme was 'Living Well with Chronic Illness', and before the forum, I met with three lovely ladies to mull over what I might like to discuss in my talk (sex? It was a unanimous YES). … Continue reading Speaking my truth (and a whole lot of fact)
Shot a gun ✔ I did my firearms safety training in January. Be afraid. Very afraid. Gone on a blind date ✔ Oh, the horror. Skipped school ✔ Watched someone give birth ✔✔ My eldest and youngest nephews, now 14 and 9 respectively. It was an absolute honour. Watched someone die ✔✔✔✔ I think I've … Continue reading Riding on elephants and other shit I haven’t done
Yesterday I turned thirty-nine - a stage of life I never thought I would or could ever reach from when I was was a little girl, to when I had my transplant and certainly after I survived cancer. Each year is such a gift, and age is a privilege. Lungs in perfect working order for … Continue reading Oh my – we have a New Year IN our hands and it’s going to be radtastic!
I'm just about jumping out of my skin. I had my first good night's sleep in eleven days, so I'm feeling rested. I've been waking up around 4-5am, which is not the norm for me. I've never been a morning person, though when I first moved into my beloved flat I became one of those morning … Continue reading My new normal
I never thought I would see another eight years. Really, I didn't. After my cancer surgery in 2007, my oncologist was certain that more cancer would grow, that the surgery I had wouldn't hold, and that I'd die. Thankfully that hasn't happened, and today marks eight years since I underwent the surgery to save my life. … Continue reading Eight years in remission – viva la vulva!
I posted a rant on my chasing away salt water page earlier today, much of which I've included in this piece. It involves the Cystic Fibrosis community - my community, if you will - and my burning question was this: when will people start taking responsibility for their lives? Why are there GoFundMe pages being created to ask for … Continue reading I am an addict
Last night saw unprecedented measures of anger, disbelief and absolute exasperation surrounding the 60 Minutes interview with disgraced 'wellness' blogger and creator of The Whole Pantry empire, Belle Gibson. For once, I went against my better judgment and watched the interview and as a cancer survivor, I have a few things to say. Firstly, I … Continue reading Why I forgive Belle Gibson
Today I found the most amazing resource for people - young people - who have ileostomies and stomas (poo bags). You can read about my experience with my poo bag HERE. Ever so glamorous, though it was really the most harrowing time of my life and I physically and spiritually felt a part of myself disappear. … Continue reading Where was this when I needed it?
She sits by the windowsill - window seat holding her shearing form. Fingers of sunlight splay across her back and she smells tuberose on the morning air as her body is swallowed by the full throat of summer. Shifting her form to a gentle lean, she spies a framework of desire where the language of hummingbirds between … Continue reading Topography