I don't usually share fundraisers, and I don't have any time for often vacuous fundraising campaigns, but this one is so far from vacuous, I don't even know where to start. I've said time and time again that Cystic Fibrosis is a fucker of a disease. It takes everything both necessary and dear to you … Continue reading With a little help from my friends?
We all reach places in life. Crossroads, turning points, junctures, choices, decisions - even Rubicon moments. For me, after nineteen years, I've reached a place of happiness and peace having come into the quiet of my heart. I feel settled. Life is simple, so I'm going with the ease and grace of that. I've done … Continue reading Transplanniversary, with a solar eclipse chaser
I've been sorting through index cards, rogue pieces of paper and old photos because I'm moving. Moving out of the city, and returning to the trees and all of the secrets they're waiting to tell me. They've been calling me for a while, and it's time. I've become weary of city living over the last couple … Continue reading A trip of infinite sadness and regret
For the last eighteen months, I've been on the organising committee for the 2017 Spiritual Care Australia conference, alongside three other incredible spiritual carers, Tanya, David and Pauline. Earlier in the month, the three day spiritual bonanza/lovefest was held on the Gold Coast where it was a resounding success (no, I'm not being biased - we kicked … Continue reading The Spirit of Things
I've been thinking about my thirties. About how they started, and how they're about to end. Ten years ago at my thirtieth birthday party, I was bloated from massive doses of steroids I'd had to have earlier in the year due to a serious respiratory virus. I was puffy faced and swollen, and going into my third … Continue reading The birth of my fourth decade
One year on, and three years drug free. Just quietly, I’m feeling quite proud. And strong – SO strong.
Always expect the unexpected. Be prepared like a girl scout without the rules (but with teh cookies). That’s always been one of my life’s mottos. After taking my last ever dose of opiate antagonist therapy last Friday, I was relieved when I only had some minor restless limbs when I turned in for bed that evening. I had been on the lowest dose possible, so I couldn’t have predicted what was going to happen next. On Saturday night, I drove up the coast for a prawn fest and I lay awake all night. I only had a couple of ‘punches’, in that my arms went a little haywire and my legs were sore, but it was nothing I couldn’t handle.
I’ve always adhered to the adage that our hell is here on earth, and on Sunday night, that was very much the case. My legs were kicking uncontrollably, my…
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Someone I've known just shy of twenty years said something to me back in September, and I've been ruminating over it as I approach my fortieth birthday. We were talking about our inner voice. You know, about what we say to our selves in the quiet of our hearts; the things we think, but keep to … Continue reading Ch-Ch-Ch-Chaaaaaanges
Tonight as the waning moon floats between shelves of cloud - the stars liquid and alive - I will whisper, 'I am still here.' A bittersweet offering, but one I cast into the world as a call to arms. With each passing year, I harvest guilt, siphoning off grief as I pick the fruit and plant more seeds for … Continue reading A love letter to my lungs on this, your eighteenth birthday
Wooloweyah 28.6.16 It is akin to a dream, this dense clump of trees unfolding before me, reaching sharply into the sky. As I walk through the forest under canopies of palms and eucalypts and a discord of screaming birds, my feet arrive at a bog. I'm at the lip of a lake I cannot reach for the … Continue reading The places I go …
In May, I was invited to speak at the P.A's clinical ethics forum for National Palliative Care week. This year's theme was 'Living Well with Chronic Illness', and before the forum, I met with three lovely ladies to mull over what I might like to discuss in my talk (sex? It was a unanimous YES). … Continue reading Speaking my truth (and a whole lot of fact)