I call Cystic Fibrosis a series of small brutalities. But small brutalities multiply and before long you're deep within Trauma Land. On Monday, my Mum and I returned to the Royal Children's Hospital for a site visit after it was demolished last year and it feels as though I've abandoned my tribe. I said a … Continue reading The sense of an ending
This time twenty years ago, I was dying in hospital. Not to be hyperbolic, but I really was. That's why it was so strange when I had to go into hospital last week to start IV antibiotics for a sinus infection. Sinus - it sounds so innocuous, doesn't it? Except that it's become one of … Continue reading This time 20 years ago: on the waiting list
A few months ago, I was driving to see a client, and as I always do when I'm on the Inner City Bypass, I quickly looked to my left where the Royal Children's Hospital is. Or I should say, was. When I'd finished my shift, I drove back to the Royal, parked my car and got as … Continue reading Endings, beginnings …
Last week, I joined the Queensland Writers Centre #8WordStory challenge on Twitter, and out of thousands of entries, the audaciously talented Nick Earls chose one of mine to feature on a digital billboard from earlier this morning until late tonight. It’s a bit of a thrill being chosen, because there have been so many prolific … Continue reading One day only: my name in lights!
I don't usually share fundraisers, and I don't have any time for often vacuous fundraising campaigns, but this one is so far from vacuous, I don't even know where to start. I've said time and time again that Cystic Fibrosis is a fucker of a disease. It takes everything both necessary and dear to you … Continue reading With a little help from my friends?
We all reach places in life. Crossroads, turning points, junctures, choices, decisions - even Rubicon moments. For me, after nineteen years, I've reached a place of happiness and peace having come into the quiet of my heart. I feel settled. Life is simple, so I'm going with the ease and grace of that. I've done … Continue reading Transplanniversary, with a solar eclipse chaser
I've been sorting through index cards, rogue pieces of paper and old photos because I'm moving. Moving out of the city, and returning to the trees and all of the secrets they're waiting to tell me. They've been calling me for a while, and it's time. I've become weary of city living over the last couple … Continue reading A trip of infinite sadness and regret
For the last eighteen months, I've been on the organising committee for the 2017 Spiritual Care Australia conference, alongside three other incredible spiritual carers, Tanya, David and Pauline. Earlier in the month, the three day spiritual bonanza/lovefest was held on the Gold Coast where it was a resounding success (no, I'm not being biased - we kicked … Continue reading The Spirit of Things
I've been thinking about my thirties. About how they started, and how they're about to end. Ten years ago at my thirtieth birthday party, I was bloated from massive doses of steroids I'd had to have earlier in the year due to a serious respiratory virus. I was puffy faced and swollen, and going into my third … Continue reading The birth of my fourth decade
One year on, and three years drug free. Just quietly, I’m feeling quite proud. And strong – SO strong.
Always expect the unexpected. Be prepared like a girl scout without the rules (but with teh cookies). That’s always been one of my life’s mottos. After taking my last ever dose of opiate antagonist therapy last Friday, I was relieved when I only had some minor restless limbs when I turned in for bed that evening. I had been on the lowest dose possible, so I couldn’t have predicted what was going to happen next. On Saturday night, I drove up the coast for a prawn fest and I lay awake all night. I only had a couple of ‘punches’, in that my arms went a little haywire and my legs were sore, but it was nothing I couldn’t handle.
I’ve always adhered to the adage that our hell is here on earth, and on Sunday night, that was very much the case. My legs were kicking uncontrollably, my…
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