Where was this when I needed it?

Today I found the most amazing resource for people – young people – who have ileostomies and stomas (poo bags). You can read about my experience with my poo bag HERE. Ever so glamorous, though it was really the most harrowing time of my life and I physically and spiritually felt a part of myself disappear. A part of my womanhood and a massive chunk of my dignity where I lost myself. I guess that happens when your vagina is peeled like a grape, you have to have your bowel redirected in the form of a poo bag and you nearly die.

There is a lovely and courageous young woman called Talya blogging over at Feeling Ostomistic, and here are her top ten things people don’t tell you when you have an ostomy. The only point of difference is that I still have a normal belly button – I just have a gnarly scar next to it.

If only this support was around when I had my ileostomy, then I really believe it would have made my whole experience a little easier to bear knowing there was another young woman out there who was struggling just as I was. Knowing I wasn’t alone. Because I truly felt it. Talya is beautiful, brave, boisterous and I hope she keeps blogging forever. The world needs her.

3 thoughts on “Where was this when I needed it?

  1. Bless you!! I was 27 when I had a shunt put into my brain and had a year off work. That didn’t do wonders for most areas of my life either but certainly less confronting. It’s hard for any young person going through serious illness and so isolating…especially when it feels like everyone else out there is falling in love, running along the beach and feeling truly liberated. Young people experiencing severe life threatening illness really do need a huge hug and more age-appropriate support.

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